My older brother has CIDP. My mother seems to be convinced that CIDP and ALS are the same disease, but I am quite positive that--although they are in the same family of diseases--they are not the same disease. Who's right, me or my mom?
ASHLEY D
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I believe you are right. I found this and I hope it helps! That website is very helpful to learn what they are!
Individuals can be misdiagnosed as ALS. Due to a mix of upper and lower motor neuron lesions. M.M.F. (Multifocal Motor Neuropathy) also looks like ALS has no sensory involvement. Only the autoimmune ALS gets sensory changes and we call this a CIDP variant. Thus a false diagnose of ALS. can be made. Dr King Engle at USC has helped such patients with IVIg who came in wheelchairs and in two months were walking. Untreated CIDP can turn into ALS.
Ann
A number of people in my MS support group have had chemotherapy. They all had progressive MS and they credit the chemo with stopping the progression of the disease. One of them was at the point where he needed a wheelchair. He is now walking again which I find amazing. They were all at the point where they used the chemo as a last resort. Exactly what the chemo does to the disease I do not know. No one knows the cause of the disease and there is no cure. While it is classified as an autoimmune disease there is absolutely no proof that MS is an autoimmune disease. Scientists believe that heredity plays a role but I would take any statistic with a grain of salt. The truth is that almost nothing is known and every case of MS is different.
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