Can you have CREST syndrome and RSD(Reflex Sympathetic Dystrophy)?? I need answers!!! >_<!!?
Hey!!!
My doctors are haveing a though time with my Medical case because of the symptoms I have presented. I am going to Duke Medical Reseach hospital any day now (when ever they have a cancelation. I'm on a wating list) my syptoms include:
fainting
-dizzyness
-Headache(after standing up from ither a laying or sitting position)
-High Blood pressure (even after being on Nifedipine, asprin, and fish oil for months my BP normaly runs around 160/100 something)
-skin discoloration upon cold or stress (blue, white, pruple, and dusky gery color)
-Raynaud's phenomenon like features
-rashes upon sun exposure in odd patterns (even under my clothes or when I take hot shower
-scalley rashes (face, trunk, thighs, and butt)
-different rashes in shower (black splotchy all the way up to my thighs sometimes this happens when I'm cold)
-vomiting-clubbing and yellowing toenails(my tips of my toenails look like they are pulling away)
-chronic pain in feet (tingling and achyness never go away)
-rough skin on the tops of my feet( where they trun splotchy black) this occures even when the skin colr is normal
-lack of appitie (can't eat much)
-unable to sleep well ( get about 4 to 5 hours of sleep)
-abnormal sweating (underarms, feet, hands, and sometimes arms and legs)
-hair loss
-chest pain upon exertion
-random feavors
-haveing issues concentrating
-musclar atrophy in calves and thighs
-incerase in feet pain and new pains in hands upon exertion
-adema-swelling joints
-cracking,popping, snapping of joints
-lack of energy
-At times looseing the comple ability to walk
- right lymthnode in my neck is sowllen
-fluttering sensation in chest upon exertion, if I get up too quicky or when i get too hot
-lower back pain
-neck pain (collarbone region)
-high pulse rate 117 at times
-abdomenal pain
-pain in joints
-looseing the prefierial pulses in both feet at times
-I can't walk normaly. I walk on my heels. I cant walk with my feet flat.
-early signs of depression
-mental confusion and disorentation
Thats about it. All my 17+ doctors are sending me to Duke Medical Research hospital this fall. I'm only 17 years old and fixing to be a senior in high school this fall. It gets frustrating going to my doctors and all they can do is shrug their sholders at me. I have been atmitted to the hospital and have been rushed multipal times to the ER
I also have the skin yellowing that is rougth on the top of both of my feet. I know I don't have cancer b/c of my blood work. My blood pressure drops when I stand up after sitting. Please Help me!!! I know you all must know what is like to be frustrated. I have lost over 20lbs. I eat less than a meal a day!!! I can't continue to live like this much longer!!!! It is driveing my Mum insaine!!!!