Can you have CREST syndrome and RSD(Reflex Sympathetic Dystrophy)?? I need answers!!! _

Question

Hey!!! 

My doctors are haveing a though time with my Medical case because of the symptoms I have presented. I am going to Duke Medical Reseach hospital any day now (when ever they have a cancelation. I'm on a wating list) my syptoms include:


fainting
-dizzyness
-Headache(after standing up from ither a laying or sitting position)
-High Blood pressure (even after being on Nifedipine, asprin, and fish oil for months my BP normaly runs around 160/100 something)
-skin discoloration upon cold or stress (blue, white, pruple, and dusky gery color)
-Raynaud's phenomenon like features
-rashes upon sun exposure in odd patterns (even under my clothes or when I take hot shower
-scalley rashes (face, trunk, thighs, and butt)
-different rashes in shower (black splotchy all the way up to my thighs sometimes this happens when I'm cold)
-vomiting-clubbing and yellowing toenails(my tips of my toenails look like they are pulling away)
-chronic pain in feet (tingling and achyness never go away)
-rough skin on the tops of my feet( where they trun splotchy black) this occures even when the skin colr is normal
-lack of appitie (can't eat much)
-unable to sleep well ( get about 4 to 5 hours of sleep)
-abnormal sweating (underarms, feet, hands, and sometimes arms and legs)
-hair loss
-chest pain upon exertion
-random feavors
-haveing issues concentrating
-musclar atrophy in calves and thighs
-incerase in feet pain and new pains in hands upon exertion
-adema-swelling joints
-cracking,popping, snapping of joints
-lack of energy
-At times looseing the comple ability to walk
- right lymthnode in my neck is sowllen
-fluttering sensation in chest upon exertion, if I get up too quicky or when i get too hot
-lower back pain
-neck pain (collarbone region)
-high pulse rate 117 at times
-abdomenal pain
-pain in joints
-looseing the prefierial pulses in both feet at times
-I can't walk normaly. I walk on my heels. I cant walk with my feet flat.
-early signs of depression
-mental confusion and disorentation

Thats about it. All my 17+ doctors are sending me to Duke Medical Research hospital this fall. I'm only 17 years old and fixing to be a senior in high school this fall. It gets frustrating going to my doctors and all they can do is shrug their sholders at me. I have been atmitted to the hospital and have been rushed multipal times to the ER

Anonymous · Accepted Answer

It is possible to have RSD with several different types of other conditions, but by your symptoms you certainly have much more than RSD. The symptoms of RSD are severe burning pain, pathological changes in bone and skin, excessive sweating, extreme sensitivity to touch. All patients do not present all of the symptoms, but the symptom that is most common is extreme burning pain, and extreme sensitivity to touch. RSD does not have many of the other symptoms that you are presenting so seeing the specialist is something that you need to do asap. I know how it is to be so young and having such problems...I'm 15 and have had RSD fro almost 2 years. I would suggest seeing the doctor- you possibly could have RSD, but it is certainly not only RSD if you do have RSD. www.rsds.org is a good website for information on RSD. Good luck!

Anonymous · Answer

The neuropathy disease can cause the symptoms such as for example: tingling, prickling experience, numbness of the location round the influenced nerves, unexpected pains, sharp or even burning sensation in the nerves.
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adrianna · Answer

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Can you have CREST syndrome and RSD(Reflex Sympathetic Dystrophy)?? I need answers!!! >_<!!?

4 Answers