When patients and family members say. "We want everything possible done."?

Risking some angry responses here. I heard this quite often as an oncologist - "We want everything done.". But these days there are so many more things that can be done and many treatments are very expensive with no chance of cure. I specifically recall the family of a 96 year old woman with widespread incurable gastric carcinoma. They wanted "everything done." The patient could not speak for herself. With health care reform focusing on cost containment, who will tell doctors and patients/families that it is not cost effective to do everything possible? Insured Americans - third party & Medicare - are often accustomed to having "everything done" regardless of costs. In the 1980's and 1990's, Medicare did not tell us we couldn't try aggressive chemotherapy in 96 year old patients. Who should make these decisions - doctors, distraught families, or the government?
The trouble is that some (not all) oncologists will treat everyone rather than explain why treatment is not advisable. Some because that's how they make money, and some because it's easier to treat than to spend the time explaining. The good news is that we have many more new treatments for cancers. The bad news is that they are incredibly expensive. Who will limit care rationally in these emotional situations?

2009-07-26T13:04:46Z

I'm referring to the U.S. health care system.
Also - after extensive discussion - I was able to talk that family out of putting that 96 year old woman through aggressive chemotherapy which was far more likely to do harm rather than good. For non-medical people out there, there is zero chance of a "cure" with chemotherapy in widespread gastric carcinoma.

2009-07-26T13:16:15Z

http://patient.cancerconsultants.com/CancerTreatment_Gastric_Cancer.aspx?LinkId=53917
If you look at these combination chemotherapy choices, think about how well a 96 year old nursing home patient would tolerate these. And should these national health care dollars be spent here - or on better health care for children? I don't think we can afford to do everything for everyone with today's medical advances. This means some degree of rationing which I suspect is part of accepted life in Britain and Canada.

2009-07-26T18:27:38Z

"everythi." - I like your thinking, I just want to see people's thinking. A young person with head trauma is very different from the 96 year old person with widespread gastric cancer. I only chose one example, but I have seen many thousands of others. Whatever malignancy you defeated was obviously the case of a younger woman. I have seen a few miraculous recoveries among the thousands of persons I saw with advanced cancers. Can we in the U.S. afford to go all out treating 100 people to help just the one who might have the miracle response? What about a 5% chance of response? 10%? At what age do we say it's OK to not spend hundreds of thousands of $$$ on desperate cancer treatment measures? If 96 is OK by you, how about 93? 88? Where do we draw the lines?
Can we spend the entire federal budget doing everything possible for everyone? I would love to do that in an ideal world with unlimited resources for all people. Also, I've never pretended to be God.

2009-07-26T18:49:28Z

I agree that pharmaceutical companies, health insurance companies, medical supply companies, and some doctors not make obscene profits from medical care. I was on a salary of ~$80,000 per year the last six years of my medical practice. I didn't think $80,000 per year was excessive after 13 years of training to become a hematologist oncologist. The trick is how to regulate the greed and excess profit taking with health care reform.

2009-07-26T19:08:01Z

WOW, Panda - I am certainly not talking about withholding treatment for a young person like your son. I think the money should be spent on the young. We spend so much on our increasingly elderly U.S. population. I knew this might strike some nerves. The discussion is good. Where do we make cutbacks? Increasing Medicare and Medicaid costs are unsustainable now - even without covering the uninsured Americans. There has to be some form of rationing - and we won't like it. That's my point. We were usually allowed to "do everything possible" in the 1980's and 90's. Those days appear numbered unless everyone charges much less.

2009-07-27T08:48:41Z

"BSherman" has exactly the kind of thoughtful answer I was looking for. The latest bill in the U.S, House of Representatives reportedly has nothing included about malpractice reform. Some U.S. doctors order every test and "do everything possible" to avoid malpractice suits. Some people in the U.S. expect everything - including perfection. If something goes wrong, big money is expected - as if that assuages the loss of a loved one.

2009-07-27T08:54:17Z

"Randy" has an amazingly thoughtful answer. I can't believe three people would give him thumbs down, but I have never understood the thumbs down part of this site. I never give anyone a thumbs down.

2009-07-27T09:18:08Z

"Denisedd" has raised another excellent point. The family members of the 96 year old woman I mentioned would not have pushed to have "everything done" if THEY had had to provide the tens of thousands of dollars to pay for it. That's when people back off. This nice lady was going to die soon no matter what I did or how much money we spent trying to postpone death. I think we would have ended her life more quickly or simply made her more miserable with aggressive chemotherapy.
I didn't "let her die." She was going to die soon no matter what we did. I was trained for many years to know that. I believed comfort was more important.
If we as a nation (the USA) want "everything done" for everybody, we will all have to pay much more in taxes - which is OK with me.
I would prefer to do everything possible, and I need very little money for myself. Even with unlimited resources, subjecting some people to aggressive chemotherapy is wrong medically and rationally. "Primum non nocere."

Anonymous2009-07-26T19:39:40Z

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Your question goes to the core of the American health care debate.

While Medicare will pay $200,000 for pointless treatment on an 80-year-old patient, many people die in the prime of life because they have no medical insurance. How many 20, 30, and 40-year-olds skip medication and routine exams because of cost issues? I recently read a government finding that estimates 18,000 Americans die annually from preventable causes as a direct result of lack of insurance.

The government estimates that 500,000 families enter bankruptcy every year as a direct result of a medical crisis. Whether from lack of insurance, under-insurance, or the inability to pay ordinary household bills while sick. . . it is an ongoing national catastrophe.

What amazes me most are the sanctimonious know-it-alls who blame patients for illness-related financial troubles. I have actually read responses in this very forum saying, "If you don't have insurance then you deserve to die." Is that the type of America we want? Is this how we should treat our fellow citizens?

Every other developed country has longer life expectancies than the US. Those countries also have government-managed health care. France, Britain, Canada, and all the rest have generally better health outcomes than the US. Why is that?

The litigation environment is a big part of the problem for health costs. Juries award huge settlements for questionable claims. I am always reminded of the woman who spilled hot coffee on her lap from a McDonald's drive-thru. She said McDonald's didn't warn her that the coffee was hot, so the jury gave her $1,400,000. If spilled coffee gets you $1.4 million, then medical malpractice should get a lot more, right?

I believe that America needs to learn from Europe and Asia regarding health care. Frankly, our country has the most expensive and ineffective health system in the developed world. Just check World Health Organization statistics if you don't believe me.

MM2009-07-26T18:52:00Z

I would just like to respond to your question from a parent's perspective and a granddaughter's. Although it is always a huge factor, I don't believe money should be the issue where health care is concerned. However, I don't feel that everything should be done in a situation where there is nothing that can be done, regardless of age. A family should be told the whole truth and should be advised of all possible treatments and there consequences good or bad. Also, they should be told what the out come may be as far as can be determined. Only then can a family make an informed decision about their loved ones life. At the same time the family should take into consideration that "quality of life" is the decision maker. If you don't know the outcome, then everything should be done, In the case of a a 93 year old granny or a 16 year old baby girl, I don't believe anyone other than the family has the right to make such decisions. I am speaking from experience in both cases and I feel very strongly that if nothing can be done then nothing should be done. On the other hand, I also feel the only ones to make that decision is the family, Not doctors and not the government and not insurance companies. It is an emotional situation, but when given all the facts the family has the responsibility to make the right decision. Some families would not make an unselfish decision based on the facts, but doctor's don't always make the right call either. I don't believe that age should be the factor that makes one try or not try to save a life. As I said before, the fact that a person will be subjected to unnecessary treatments when there is no chance for survival or no quality of life should make the choice between treatment or letting them go in peace no matter how hard that may be. Naturally the doctor should be involved in the decision to the extent of giving the family their professional and personal opinion. I believe that most people can put their own feelings aside when given all the facts and do the right thing, as the family you wrote about did when you talked to them in a way that made them understand the futility of their circumstance even though they were so distraught. Communication between doctors and patients or family is very important.

Anonymous2009-07-27T04:22:30Z

I understand what you are saying. There has to be a better way of doing things and this has been a long time coming. I do not like the idea of the government making these decisions though. I think there are too many people dictating how doctors practice medicine as it is and the government has a way of screwing things up beyond belief. In the past few months I know a few oncologists who are rarely giving chemo in their offices anymore due to the cuts in reimbursement. So where is the savings when it is cheaper to treat the patient in the office than it is to admit them? How long can this go on before the hospitals can’t afford it either?

There has got to be a better way to spend money. It is upsetting to see someone with an early stage cancer have a worse prognosis just because they have poor insurance or no insurance. It is also upsetting to see the amount of money spent on healthcare for illegal aliens when our own people are doing with less. Living in Los Angeles I see a lot of this.

Maybe in a scenario like you mentioned there could be a scale that increases the amount paid by the patient and/or their family depending on the patient’s age, cancer, stage, comorbidities, etc. Sometimes people become a little more realistic when it is their money being spent. Maybe it’s just me, but it seems elderly patients are pretty realistic in these situations it is the family that is usually the problem. At the same time you also want to leave room for the patient who wants to live long enough to see their grandchild for the first time or some other important milestone.

It’s a good question. There is no doubt something is going to happen and whatever it is people will not be happy.

~~Granny Panties 96~~2009-07-27T09:12:26Z

Giving doctors a malpractice payout caps is like giving truck drivers a payout cap when they choose to drive recklessly or under the influence. Once a person is seriously injured by their wrongdoing the cost of modifying their life is very high. So should someone that is left unable to work and required long-term medical care until they die only be paid out half the amount they need to live? The harm was done. Who should pay for the expenses that have been incurred onto this person who has been wrongfully and recklessly harmed? Should they just go on welfare then and let the government pay for what some reckless doctor decided to do?

It is difficult enough to sue and a court of law won't find someone guilty unless there is proof. I have a friend that was overdosed with painkillers while she was at the hospital. She kept telling the nurses and the doctors she could simply not handle that many painkillers. They never listened. If it wasn't because her daughter was sitting right next to her and found her at the middle of the night not breathing, she would be dead.

It was finally confirmed that the dosage prescribed by the doctor was excessively high for her little 100 lb body. But since she seems to have not suffered any serious consequences or lasting ailments from her near death experience, lawyers told her that there was little or nothing she could gain by suing the doctor. The doctor still has his license and for all we know he is still overdosing little old ladies with painkillers.

I bet the engineers that built that bridge in Minnesota agree that there should also be a cap on Engineering malpractice. Hell, why don't we put caps on every kind of malpractice? Are doctors all of a sudden above the law? If there is a cap placed on one kind of malpractice, it should be applied to all fields of work then. Or is everyone else second-class citizens in relation to doctors? Why laws to protect them and not us?

Anonymous2016-04-10T07:01:55Z

As advised pray and speak your concerns with your spiritually strong brothers and sisters, 1 Peter 3:21 has always given me the answer to why being baptize is so important where it says: 21 That which corresponds to this is also now saving YOU, namely, baptism, (not the putting away of the filth of the flesh, but the request made to God for a good conscience,) through the resurrection of Jesus Christ. 2 Corinthians 4:4 explains why your family objects to your baptism and since they are close family members ask them if they will let you explain why you are getting baptized & if they will prepare a statement like preparing a talk and during that statement express your firm resolve & reason for getting baptized. By doing this you will see if their concern is for you or if they are trying to manipulate you into their views and they are not concerned about your views. I would have the sister who studies with you there for support. Anything you do will not make it an easy task & the most simple way is to say this is your choice and if they want to know why you are doing this you would be more than happy to explain your reasons. Paul said opposition would come from our own family's and we should always put Jehovah first & this can be very difficult when it comes to family members that you love and know they love you, there is no easy answers. Our prayers will be with you! Agape fixerken

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