Anyone out there w/Crohn's disease?

My 24 yr old daughter has had it since she was about 10. Remicade intravenously has worked best for her. She gets it every 8 weeks. At one point she also had surgery to remove a portion of her bowel and since that surgery 3 years ago has been virtually pain free.

I've had Crohn's disease since the fall of 1997, at the age of 23 yrs. It was pretty bad a first and I've been on almost every drug/medication out there. The last resort was Remicade. Expensive, but it helpded me for a while. The last few times I had it, I'd be fine for a few weeks and suddenly I'd get real stiff and sore. I could hardly walk because I was in so much pain in the knees, legs and hands. My husband and I decided that I should stop the treatment. We wanted to start a family and I couldn't be on the Remicade if I was to get pregnant. My last dose was in December of 2003.

After that, I did pretty good. I'm only on Imuran and am now 37 weeks pregnate! My whole pregnancy has been a blessing and I've haven't felt as good as I have in the past 9 years!

I pretty much watch what I eat and take the Imuran. I keep a journal of what I eat, meds I'm taking and how I feel on a daily basis. This helps me find out what foods bother me and keep track of everything. Not only does it help me, but also my doctor.

I have had Crohns for over 15 yrs, after having surgery 8 yrs ago, have been receiving treatment of Remicade every 2 months. This has been the most effective treatment for me.

The most effective treatment is eliminating the causes: Dairy, go to "milksucks.com" and find out about the paratubercolosis that causes Crohn's disease, and Gluten in Wheat causing the same problems (www.dogtorj.net). Good luck.

I have had crohn's for over 15 yrs had a bowel resection in may of 99 & my last "major flare up was may 2005, I have been on remicade since then every 8 weeks I have tried every other med out there avail. for crohn's & so far the rem. is working (knock on wood) my next option is another bowel resection because of the narrowing in my ilieum.

I have had Crohn's now for 15 years. No surgeries to date, but have been hospitalized up to 6 weeks at a time for "gut rest" since the disease was so severe they could not put me on a colostomy. In any case, 3 years ago my doctor introduced me to Remicade and WOW. It seems as if it is in remission....but as we all know, it is still present. I receive it every 12 weeks, IV drip. Expensive, however you can find doctors who administer it in their office for the cost of an office visit co-pay versus the hospital charging any where between $10K to $30K per session. Other maintenance drugs Pentasa and Imuran. Pentasa 1g x4 day and Imuran 175mg daily.

If you would like to know more... feel free to email: rickdawnjames@cox.net

XIFAXAN.

I am a walking advertisment for this drug. It was prescribed to me by a doctor at the Cleveland Clinic. I have been fine ever since I started in in 2005.

I am on Asacol & 6mp. I also followed the Specific Carbohydrate Diet for awhile. That worked real well.

the singer anastasia has it. look on her website and you may find some info.