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Looking for information on relapsed Wilms Tumor.?
My son was diagnosed with a stage 3 Wilms Tumor July 2005. He successfully completed 6 radiation treatments and about 6 months of chemoherapy.
Right now we are awaiting testing to see if the cancer has relapsed to one of his lungs.
I know there is a website out there with relapse stats, treatments options, etc... but I can not seem to find it. I would love some help to locate this.
Thanks!
Only post if you have found a useful website.
Prayers and well wishes are great! and I thank everyone for them.
Please just post useful links.
I am on the ACOR Wilms Tumor listserv. My son's website is apart of the ACOR list of kids pages. NWTGS doesn't give the info I seek nor does cancer.gov.
2 Answers
- PandaLv 71 decade agoFavorite Answer
Hi, I know what you are going through (my son was in remission with DSRCT for 8 months and just had two nodules reappear on top of his liver). Anyway there are some support groups out there for Wilms Tumor and they may be able to guide you:
National Wilms Tumor
Wilms Tumor ListServ
http://listserv.acor.org/archives/wilms-kids.html
NCI: Wilms Tumor
http://www.cancer.gov/cancertopics/pdq/treatment/w...
Wilms tumor kids
http://www.acor.org/ped-onc/hp/wilmspages.html
Wilms Tumor Page
Directory of links for Wilms tumor
http://dmoz.org/Health/Conditions_and_Diseases/Can...
Hope that you find all your answers. Stay strong and positive!! Courage, my friend.
- 1 decade ago
Wow am so sorry to hear that! I feel for you and i know this has to be tough for you and for your son. I wish you luck and hope things turn out for the best.......There is always prayers and alot of hope!
