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CAN ANYONE HELP? After one year symptoms still exist. Debilitating nausea. She wants to be a chef!?

My daughter turns 18 in February ’07. She went to a pediatric gastroenterologist last year. No luck with the doctor. No regular “G-E” will see her until she is 18. After living with her for a year in this condition and hearing others with similar problems strongly feel her problem is the gallbladder. However, no doctor will remove it if tests do not verify it as the problem. One year later -no results from tests listed below or even a surgery to open a stenosed bile duct. We are looking for further options.

Symptoms began 8/5/05

Pain/nausea -- central inferior to xyphoid. No complaint of heartburn. No reflux. No pain into the chest cavity. Nausea can be at any time over 24 hours. Often wakes up nauseated. Fat and protein seem to exacerbate symptoms. She has eliminated meat, dairy, eggs, fish, nuts, citric fruits. She is trying hard to maintain balance and fortunately has stabilized her weight.

Tried OTC Tums, Malox, Pepcid, Gas X, Phazyme.

Update:

Saw pediatric gastroenterologist. Diagnosed with IBS and tried the following remedies with no results: Prescriptions—Nulev, Donatol, Reglan. Ultrasound - showed dilated bile duct. Hydascan – negative. ERCP 1/06/06 – found stenosed bile duct. Surgery opened it,no stent used. Follow up: Ultrasound, Barium swallow with small bowel follow through, Blood work for celiac sprue, All enzyme levels normal, Lipase had been slightly elevated prior to ERCP. After one year symptoms still exist. Debilitating nausea. CAN ANYONE HELP? She wants to be a chef!

2 Answers

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  • 1 decade ago
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    Has she only seen the one pediatric ge? If so, take her to a different one. No dr is going to remove her gallbladder if they can't find anything wrong with it. Did her symptoms get any better after the surgery on the bile duct?

  • 1 decade ago

    My sister has been diagnosed with C-dif (colostridium dificile, I believe)...an overabundance of a bacteria normally present in smaller numbers in the intestine. Her symptoms sound similar to your daughters...with the addition that she has had chronic diarrhea for 8 months now and is struggling to maintani her weight.

    Ordinarily, C-dif is treatable with anti-biotics...my sister is just one of the unlucky few for whom the disease has held on. If no one has suggested this as the problem to you, maybe you should suggest it to them and ask for the appropriate lab work to be done.

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