Does anyone know of any good online support groups for people with seizure disorders?

Question

I have been suffering with Grand Mal seizures for the past 7 years and they have gotten worse over the past couple of years. I have sought treatment from a neurologist who has tried three different drugs that have all caused terrible side effects. I need people to talk to who can share their experiences with me and who can help me cope with the limitations I have as a result of my seizure disorder. Any information would be greatly appreciated.....

Anonymous · Accepted Answer

I KNOW EXACTLY HOW YOU FEEL. I AM AN EPILEPTIC. I HAVE BEEN SINCE I WAS 2. I AM ON THE LAST MEDICATION POSSIBLE AND HAVE BEEN TOLD I AM NOT A SUITABLE SUBJECT FOR SURGERY. IF YOU ARE LOOKING FOR A SITE ONLINE,I HAVE NOT BEEN ABLE TO FIND ONE. IT'S RIDICULOUS. I UNDERSTAND THE FRUSTRATION. THE ONLY THING I CAN TELL YOU IS THAT THERE IS A PLACE CALLED THE EPILEPSY FOUNDATION.THEY MAY BE ABLE TO HELP WITH SOME STUFF. IF YOU JUST WANT SOMEONE TO BE ABLE TO TALK TO,I WOULD WELCOME YOUR EMAILS. IT IS VERY HARD TO FIND SOMEONE TO TALK TO. MY NAME IS SANDRA.MY EMAIL IS jgalafleur@yahoo.ca   AVAILABLE ANYTIME. GOOD LUCK,GIRL.

Anonymous · Answer

check out 
http://l.webring.com/hub?ring=epilepsyring
because I have mild seizures too for the past 2-3 years and it is best when you have some sort of support.

kuhlmann · Answer

hi , I even have an internet site for you. It has a talk board which you are able to use to talk your subject, Plus you probably did no longer say the place you lived . for that reason i could no longer assist you with a help team on your section

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Does anyone know of any good online support groups for people with seizure disorders?

3 Answers