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Anonymous
Anonymous asked in HealthMental Health · 1 decade ago

My son suffers from autism... I need advice...??? Please Help!?

My 3 1/2 year old suffers from autism spectrum. I really need to get him the help that he needs, but I can never go out and get done what I need to. He has mandatory paperwork for benefits that need to be faxed and information that needs to be picked up that I can not get handled due to his temper tantrums and outbursts. He is on medication... but it is not helping... every second of my day is occupied by him until my husband gets home from work. By then, every office is closed. I am really getting frustrated and I don't want to take it out on him. I am not sure what I should do because the deadlines for me to get this paperwork in are almost up, and I have no help WHATSOEVER! I really hope someone can help me because I am honestly at the end of my rope.

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  • 1 decade ago
    Favorite Answer

    Our family has been where your are and I understand how you feel.

    There are many things you can do to help your son. Our son regressed at 18-19 months and the inability of our doctors to help combined with the crap out here in the Internet was devastating to us.

    We feared our son was gone for good.

    Nothing could be farther from the truth.

    Thousands of kids are being "recovered' using biomedical intervention and chelation combined with different types of therapies such as speech and occupational and applied behavioral analysis and floor time and others.

    Contact an autism support group in your area.

    The parents and a relatively small group of doctors and scientists are the driving force behind autism treatments-our regular doctors have been no help. I hope your doctor is up to speed but in the last year since our guy regressed I have heard this over and over again.

    There's no pill or surgery or guarantees of success but most kids can be helped and many will go on to live normal lives.

    Our son has DRASTICALLY improved in the last year using biomedical and speech and occupational therepy. When I was in your shoes a year ago I didnt dare to dream he'd come this far. I thank god every day for the sites I will put here for you, without them I don't know where we would be. Now I dare to dream he will be mainstreamed into kindergarten-a challenging goal for a child who just 14 months ago lost all speech, all eye-contact, didn't respond to his name played with NO toys and didn't like to be touched. He didnt feel pain and had TERRIBLE temper tantrums. It was a nightmare-i know what yo mean.

    The temper tantrums were the first thing that ended when we started supplements.

    Biomedial is not a theory from some egg head - this stuff works to some degree in most kids. Significant advances are made for about half. Some do not respond just as with any other disorder.

    It's difficult and expensive-insurance will likely be useless-ours was/is.

    There is a ton of misinformation on the internet-much of it from the medical community- regarding autism and pdd.

    There are actually groups out there that suggest you embrace the disorder as a gift, I shudder to think about the poor children whose parents do nothing to help them becasue they buy into that crap.

    We have recieved help from our school system.

    My advice it to ignore the naysayers and help your son.

    Autism is treatable and reversible but time is of the essence. Early intervention is crucial.

    God Bless you and your wonderful child and you are not alone.

    http://www.autism.com/

    http://www.ageofautism.com/

    http://www.brainchildnutritionals.com/Br...

    http://www.generationrescue.org/

    http://www.kirkmanlabs.com/index.html

    http://www.christinaburkaba.com/GettingS...

    http://www.vaclib.org/

    http://www.greatplainslaboratory.com/new...

  • Anonymous
    1 decade ago

    Call up your county social services office, and see if you are entitled to help from a social worker. They will bring the paperwork to your home and help you fill it out & help you acquire what you need. And they know how to do it, too, which is a big help. I have serious mental illness (bipolar disorder) and am entitled to such help in my home state of Minnesota, perhaps you are entitled to such help as the mother of a boy with autism in your state. If this source fails, Google some autism support sites, and see if there are local contacts for your area. They will know what resources are available, too.

    Otherwise, maybe your husband will have to take a day off, or you will have to enlist the help of a friend or relative.

    Good luck, you really are in a bad spot. All the best to you!

  • Anonymous
    1 decade ago

    Well no matter what someone says your son isn't retarded. And medicine won't cure his problem. He needs help from someone close. A father, a mother, a sister or maybe a brother. And you must keep him occupied in something. Play games with him, walk him in the park, fun things like that. I watched this movie_i forget the name alot_but it was about a boy with autism. He was able to go through life with it. He was about 5 or 6. There were things he couldn't do and things that effected his family. The family wanted to go to Hawaii, but they couldn't. The mother gave him therapy and refused to put him on medicine any longer. Then they found a temporary cure for him and he was able to control himself. Adn even though others ignorantly excludded him from fun events and didn't accept him, he proved them wrong.

  • 1 decade ago

    Try to find a local parent support group, like FEAT (Families for Early Autism Treatment). You can probably get someone in the group to help you. When my two autistic boys were being evaluated FEAT members gave us lots of good advice and even watched the boys while we did paperwork and had meetings.

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  • 1 decade ago

    You desperately need help! Autism can be a scary disease when you don't know what's going on. Do you have any friends who can stay with your son or accompany you to the office? Can you hire a High School age babysitter to come with you? Brainstorm ideas with your husband about how to solve this problem, to the point of him getting off early to help you. Remind him that your son will be in school (PreK) in August, and how is the boy going to handle that? Good luck!

    Source(s): I teach PreK.
  • Anonymous
    1 decade ago

    Get to a lawyer. You are going to have to find mental health services to help you too - I don't know where you live but look for Prestera, REM, Bureau for Medical Services, the Mentor Network, ResCare, ... somebody to help you now instead of waiting on the legal stuff to go through.

  • 1 decade ago

    Does he ever take naps, and if so, for how long? How heavy a sleeper is he? You've probably already thought of this, but it's the best I've got over here. Could your husband maybe take just one day off?

  • 1 decade ago

    tell your husband to take a day off and help you. When my brother was diagnosed, my dad had a hard time coping with it and im sure your husband will/does aswell. he needs to understand that it is still his son and no matter what, even if he cannot express it, his son will always love him and your husband will always love his son. good luck.

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