Does a disability hamper your life style!?

It takes a few years. Be patient with yourself. Don't expect people who have never had head trauma to understand what you are experiencing. Sometimes I wish everyone could know what it's like to have something, lose it, then get it back ever so slowly in a very different way the 2nd time around than we get it the first time around prior to the injury/surgery. You will never be the same. You have been altered.

Not to worry...the new you will be improved because now you know what confusion these things can cause a person to have to go through & you are now the proud recipient of EMPATHY! That's what it's like for me & so many other people who are finally speaking out & sharing how they feel after a life-changing experience!

Your question was a reminder that we all need to have more patience with ourselves & with others who may also have disabilities of some type...yet we never know if we only see their printed words, without ever being able to see the person who is typing those words in! Thanks for sharing a private part of you with the world. It might help others who are experiencing similar concerns over things like this.

Just remember that everything happens for a reason & God wouldn't give you something if there wasn't a reason for it. The old saying of "EVERY CLOUD HAS A SILVER LINING" will become clear to you as time passes on. Some of us have to get hit in the head to gain a different type of knowledge that will be usefull to ourselves & to others around us!

Oh you poor thing. My husband had the exact same surgery.

But his speech was fine after his recovery. He feels a weak-

ness now, that he didn't have before. And this was several

years ago, after having a bad fall on his head. If it hadn't been

for his poor speech, no one would have known anything was

wrong. He'd been to the ER a few days before. And they di-

agnosed him with a bad sinus headache of all things. Second

time, they said, a stroke. But kept him overnight, and then they did a scan and saw his brain was enlarged and bleeding into the skull. He's a lucky man to have been given a second chance at life.

Myself, I have Congestive Heart Failure, and a very over

enlarged heart. Legs, ankles and feet swell due to holding

water. Get tired easily, and can't walk without losing air. I

also have COPD, which also affects my lack of breath. Add

to that, Asthma, and you can see why I am on oxygen be-

sides inhalers.

I had lazer surgery for Glaucoma a couple of years ago,

and now the condition has returned to it's original state. I

will be seeing a surgeon soon. He'll also check my catar-

act condition that I've had ongoing for a few years now.

I have an arthritic spine and a condition involving my hips.

Due to a car accident, I now cope with a pinched nerve

affecting my ability to walk far or stand for long. I also have

Diabetes, and high blood pressure (the latter is under

control). So I am a walking time bomb with my heart and

lungs. Thank goodness for the internet, to keep me focused

on things other than my ill health. I need this diversion LOL!

We are just so happy to have you here in Seniors. Yes, disabilities can surely hamper ones lifestyle. I haven't been able to do much physical work for three yrs due to breaking my hip, and having a partial hip replacement that failed from the git go. Pain has been a part of my life those three years, sometimes unbearable. I hope that you will stay here at seniors. I am sure that others will feel the same way. I had a niece with the condition you are speaking of. It happened to her in her 30s. She is doing very well, but as you said it took some time. I know that I have learned a lot of patience over the last three years with my disability. I pray that your recovery, though it may be slow, will be successful. Keep a can-do attitude, and when you feel down, keep looking up. God is in control, and will help you all the way in your recovery. God bless.

Yes it does - the fatigue is the worst of all. I have fibromyalgia, severe emphysema and have just been diagnosed with a malignant tumor on my esophagus. "They" want me to have it removed ASAP - but the quality of my life (if only from the emphysema) is so poor right now, I am wondering if the surgery is a good move or not! I rarely go out - and then only if a friend takes me - friends visit - my nurse is here twice a week, and my aide comes 3 times a week. I have to pay a cleaning lady and it is getting harder and harder by the day just to cope in general. I have faith that G-d will guide me to make the right decision. I hope that you feel better very soon! CJ

I don't have the type of disabilities that all of you mentioned, and that most people think of as disability. I have Crohn's disease and Lupus. Both are autoimmune diseases and both cause a wide variety of problems, sometimes I'm lucky and both go into remission at the same time, but as a rule one or the other is active. then there are the times that they are both flareing at the same time. I have a lot of pain with internal organs, both aggrivate "uncle Arthur" Crohn's has some very embarassing symptoms that will keep me housebound, neither will kill me, but complications of either will. I had a great and wonderfully fullfilling life, and I'm still kicking so I know that even though I've had to change my lifestyle more than age alone would have demanded, I'm still very lucky. (And when I'm not feeling sorry for myself, I try to remember that ) ( lol)

Glad you came through your surgery. Did your doctors tell you the things you describe are permanent or will they ease with time ?

Disability is what you make of it. I do think people who acquire a disability later in life have a harder time adapting than those of us who have a disability from birth, as you have a means of comparison. We don't.

Other than not being able to drive, fly a plane, play sports that involve good eye hand co-ordination, being legally blind hasn't really stopped me at all. I went all through regular elemtnary and hs and graduated in the usual time from university, although no -one expected me too.

I've travelled indepdently, had jobs and careers I've enjoyed immensely but weirdly enough it's not my blindness that put me on disability , it's other more severe health problems.

Rather than wallow in what I can't do and there seems to more and more each year, I celebrate what I still can do. I play the cards I'm dealt and with the lemons make lemonade, lemon tarts, lemon pies . I allow people to assist me when I know I need assistance and I'm grateful that they offer to help.

Anyone with a disability will tell you being disabled isn't for sissies to play on something Bette Davis once said.

Oh and perhaps you might want to resubmit this question in the disability section.

I have rheumatoid & osteo arthritis, poor mobility, my husband has osteoporosis & Ankylosing Spondilitas. We sometimes THINK we can do things like gardening, decorating & other things we have always been able to do in the past but when it comes down to doing these things that is a different matter altogether! lol

We are both in a lot of pain all the time but we try to keep our sense of humour & try hard not to let it get us down which of course sometimes it does.....we're only human.

It can become very tiring sometimes especially when I go to bed at night in pain & wake in the morning still in pain. There have been occasions when I've woken in the early hours & the pain level has decreased to almost no pain at all & I've forced myself to stay awake just so I can enjoy the feeling lol lol. sometimes that is the only time I have practically pain free. Perhaps that is the time I should go out into the garden & do the jobs that need doing lol or perhaps get out the decorating equipment too lol.

I agree that with Jesus in my life it also keeps me hopeful and peaceful & that it brings with it comfort too. God bless you x

I have Fibromyalgia, Enviornmental Illness, Celiac Sprue, Tyriod disease, and I am going to get my adrenal gland checked. I have short term memory problems, severe fatigue, have many soofd I can't eat because I am allergic to gulten, and suffer from synthetic smells, and chemical smells which means there are many places I can not go. I also fell and had multiple breaks and smashed my right hand wrist bones so I only have 60% use of it, and I can't write because of nerve damage in my right hand. My heart goes out to you and I pray for a speedy recovery for you. If not for Jesus I would have checked out years ago! God Bless!

I have osteo-arthuritus in the severe degenerative stages and, serious degenerative neurological conditions. I've had surgery twelve times in about six years, One open heart with six bypasses also.

I am in pain constantly, and drugs of course and have a stimulator implant with nine wires in my spine.

I still enjoy my wood-working shop but cannot stay on my feet for more then a few hours without pain.

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