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I have a severe siezure disorder...need some advice

I have this siezure disorder that my own doctor wont diagnose as Epilepsy but she sez off the record that indeed I do have it. I am currently being treated for it with Dilantin and Xanax but I also have Diabetes and am being treated for that as well,..I have this wierd sleep disorder that allows me to stay awake for up to 4 days in a row and I'm a 49 year old male......I'm about to go see a neurologist on the 11th of August, Beside a family history and photos of my wounds from the siezures, what else should I be inquiring about to this new doctor ? (neurologist)...I'm going blind now, I used to be a professional illustrator and now I'm a worthless hunk of nothingness. The oregon health system just simply sucks, help is hard to find, good help anyway.

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  • 1 decade ago
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    Basically you are doing the right thing with family history and photos, also keep a diary of any of the attacks - what happens, when it happens, what you are doing prior to the attack. Also witness reports are very useful in diagnosis.

    Ask for an EEG as that will measure the elecrical activity in the brain. The EEG is used as one of the major tests for diagnosing Epilepsy.

    It is concerning that she wont admit that you have Epilepsy, yet is using drugs to control it - you really need to get to the bottom of that and asking for an EEG is a step in the direction. Also an MRI or a CT scan might be useful in your case. Its unclear in your question, but do you ahve seizures after you have been awake for days on end? In this case ask for a sleep-deprived EEG. The other option would be to go into hospital for 24/48 hours and have an EEG and Video telemetry.

    A high percentage of Epilepsy is idiopathic in nature - in that no known cause is found. If you arent having any form of seizures - then you dont have Epilepsy - you have another neurological or possibly psychological condition - such as None Epileptic seizures.

    Here is a link to diferent types of seizures: http://www.epilepsy.org.uk/info/seizures/index.htm...

    Source(s): I have temporal lobe complex partial epilepsy leading to secondary generalised atonic drop/tonic clonic seizures.
  • Anonymous
    1 decade ago

    i have eplepsy to i havent hade a siezure in years

    i was on dilantin for like 10 years or more

    dilantain makes your gums swell and teeth rot

    i take lamasail / lamatale

    i think thats hall you spell it

    Source(s): me
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