Mild lupus, but when it acts up...what am I doing wrong?

Question

I try to eat right, I exercise, take Plaquenil, etc. My lupus is "mild" type, but I always have something "going on."

I had been doing fairly well, and  then I get the symptoms of rheumatoid arthritis with red swollen joints and rheumatoid nodules. My face feels like it is burning on cheeks and there are lots of tiny red broken capillaries on my face. It is taking more and more Dermablend cover-up makeup to cover up my red marks. 

I am feeling frustrated as it always seems like I deal with one symptom after another and wonder what I am doing wrong. If you are a lupus patient, is there anything you know that triggers your flares? 

I know, I know...it could be worse, but if I listed all the symptoms I have had within the last 3 years, it would be a long list...

mgunnycappo · Accepted Answer

First off there is no such thing as 'mild' Lupus.  You either have SLE or you don't.  SLE is a progressive disease meaning that the signs and symptoms get progressively worse over time.  Since you seem to be having more symptoms I would say that this is cause for concern that your Lupus is flaring and that you may need steroids to help calm the flare.  Are you being seen by a rheumatologist?  Have you called them and told them about your increase in symptoms?  This is very important as stopping a flare quickly can help prevent further damage to organs such as the kidneys.  Do not be so quick to dismiss your lupus as 'mild'.  I'm sure you've heard this from a medical professional somewhere down the line and they were completely wrong to tell you this.  Good Luck to you

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Mild lupus, but when it acts up...what am I doing wrong?

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