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cks asked in HealthWomen's Health · 1 decade ago

Please I am dying here?

I am a really difficult situation right now and I would appreciate any help that anyone can give me. I have been diagnosed with fibromyalgia and I suffer from huge amounts of pain everyday. I am young and work and go to school full time. Getting up and pushing myself through each day is a major struggle...but day after day I force myself to get up and fight through the pain...I don't want sympathy from anyone..I just don't know how to cope. I had my Mom but last time I needed her she wasn't there for me and chose other activities over me and supporting me. She is willing now to help me and support me again but I am hurt from last time and I don't want her involoved and I don't need her anymore. I have 2 best friends that I can count on and my boyfriend but still it is hard. I am just looking for suggestions as to how to make life easier and how do I cope with a situation like this, where every single day is a huge struggle for me? I feel so alone, I am so young and no one understands what it is like and where I am coming from. I am so angry and frustrated, I just don't know what to do...thank you for your time

Update:

Just so everyone is clear, my mom wasn't there for me at all when I needed her..she pushed me away and now she wants to be involved..but it is way too late for that

Update 2:

Just so everyone is clear, my mom wasn't there for me at all when I needed her..she pushed me away and now she wants to be involved..but it is way too late for that

6 Answers

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  • Anonymous
    1 decade ago
    Favorite Answer

    Just try to stay positive throughout the day. I can relate to how you feel. Problems like this will sure put you down and make you feel bad. But just try to have a good time with hanging out with friends or whatever, sometimes that will help get your mind off it. I dont know how you feel exactly but hopefully its something that wont stop you from enjoying yourself throughout the day. Good luck

  • 1 decade ago

    I have a chronic pain condition called Ehlers-Danlos Syndrome, and also have fibromyalgia. (I don't have any formal numbers as I doubt it has ever been studied, but I bet about half the people who have EDS also have FM) I started having issues when I was 10, was diagnosed when I was 21, and now at 23 I am barely starting to get everything under control. There are days when I wish I would just get hit by a bus, but now that I feel like I am more in control of my body, those thoughts are a lot less frequent.

    You need to find what I call a "pain mentor." This is someone who has similar problems as you, has been where you are now, pushed through it, and is doing well. I don't know where I would be without Maggie, my pain mentor. I met her in an online support group, then in person at the EDS foundation conference. We have almost identical forms of the same thing, but she is about 15 years older than me and is now very successful in managing her pain. She was able to give suggestions about what helped her, encouragement to get me through my low points, and real life proof someone in my situation can get through it. Find this person for you, and you will NEVER feel alone.

    A community is extremely helpful as well. I found the Ehlers-Danlos National Foundation. EDNF has conferences every other summer, and whenever I go I never want to leave. There is something powerful that happens when a group of people who normally suffer alone get together in a large group, I don't really know how to describe it other than to say that I would not be where I am today if I had not met those amazing people.

    As for specific suggestions from a fellow FM sufferer? First off, realize that your end goal is pain MANAGEMENT, not pain eradication. I have resigned to the fact that I will probably experience some pain every day of my life. It took a while to accept that. But when I did, and I realized that the goal of pain management was far easier to accomplish. Your goal is to reach a tolerable level of pain that does not distract you from living a full and happy life. I will probably never be pain free, but I can proudly say that I am finally at a point in my life that pain does NOT control me.

    I really cannot give any specific suggestions other than that. Find a good rheumatologist and/or pain management doctor. Don't look to medications to do everything, lifestyle changes will have to be made. (I personally hated Lyrica, it made me gain weight and did nothing. But some people swear by it, it is different for everyone.) I have also been to a psychologist who herself has a chronic pain condition to help me through all of the frustrations. Do not be afraid or ashamed of doing this as well. Your mental well-being influences your physical well-being.

    Good luck!

  • 1 decade ago

    Keep on keep it on gurl!! Your doing great right there. I can't and won't say that I have ever been in your shoes, but I will be the first to step up and tie those suckers on. Be proud that everyday you are making an effort to live life. Quitting should never be an option. I can however relate to your mom not being there. My personal opinion is to let her get another chance. Believe me it hurts to have the one person you thought that would never let you down, actually let you down. Especially with knowing about your condition. But if she's willing and wanting to let her, but do not soley depend on her. Its almost like having a leash. You are an adult my dear, you get to chose what is said and what isn't. Let her know how you feel, how angry you are... In the end mothers can be selfish for soo long. Friends are great, but you'll be surprised to how short some can stick around. You are your own motto. Keep livin, keep lovin. You are not alone in this battle, and coping can be anything you want. Eat a bucket of ben and jerry's fish food ice cream every friday. Yell at the top of your lungs from your back window. Start a fibromyalgia club, get involved. You might be surprised at how many people are on your team. Let people help and love you. They might not know where your coming from but i sure as hell know that their willing tooo.... I hope this helps and I hope you keep rockin out!!! Know that there are a lot of people on here who are here for you =]

    Source(s): Supporter, CNA study for LPN
  • Nicole
    Lv 4
    1 decade ago

    I know how you feel. I suffer form a chronic illness, while also doing pre-med. The best thing you can do is find a support group. I've found online forums where I can talk to other people, and I follow blogs of other people with my condition. You should try: healingwell.com, and check out their forums, and google search for blogs. It really does help to find people that can truly relate with what you're going through.

    I also know how hard it is, because "normal" healthy people, don't know what it's like to be in pain every single day of your life. Sometimes it's annoying that your friends, or family will complain to you about a headache, and you just think, 'ha, a headache? I wish that was all I had." But just know that they're trying their best to understand, but it really is impossible for them to truly know what you're going through.

    You'll get through this, and there are lots of people out there willing to help you. :)

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  • 1 decade ago

    I've heard there has been some success with Lyrica. Also, I would look into acupuncture, meditation and yoga. Have you checked to see if there is a support group in your area?

  • Anonymous
    1 decade ago

    Here is an online support group: http://www.dailystrength.org/c/Fibromyalgia/suppor...

    Here's another: http://www.mdjunction.com/fibromyalgia

    Sorry about your condition. Not many people on Y/A can help you.

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