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My auntie had cancer and she died, there's this "cancer treatment" called antineoplastons, I didn't mention it?
To my cousins or anyone else. I don't know what I was thinking. I am socially awkward when mentioning things like this, especially on a sensitive subject to my cousins, but that's no excuse for something that could SAVE A LIFE.
I worried about brain stem gliomas for a long period of time, eventually coming across Burzynski. I became interested, started researching it. I thought it worked at one point (maybe more of a hope that it would work, since I thought I had a brain stem glioma and he claimed to cure them), but when I found out about my auntie's cancer, I either just didn't say anything because I was embarrassed about mentioning the treatment, or I forgot about it.
I feel so damn bad about this. Sometimes I worry about this for a whole day, researching Burzynski constantly. I could have said something, but I didn't and now she's dead. When I found out she had 2 weeks to live, I contacted the clinic and asked them, but she died about 2 days after they responded, they said she needed to be in travelling condition.
I don't like hanging around with my cousins anymore, I normally just retreat to my laptop and google antineoplastons and Burzynski and avoid social interaction with them. I don't know what they'd say if I told them that I forgot or just didn't bother telling them. I really only met my auntie once, and I don't know if I've spoken to her in my whole life.
Could I have saved a life, or does the "treatment" not work? I can live with knowing that I screwed up, but at no cost, but not with knowing that I screwed up and that someone died because of it.
I feel so selfish that I didn't say anything, does that mean I deserve to die for keeping my mouth shut? Their mother is dead and now I can never talk to them again, without knowing that they'd eternally hate me if they knew their mother was dead because of me.
Lyn- mom and nana: They probably did research, they probably just didn't find it. At her funeral, they mentioned that she tried all different things to cure the cancer.
april: Why is everyone on YouTube saying it works? I only saw like 1 or 2 comments if any on YouTube saying that it didn't work.
Denisedds: In this circumstance I would have, if it works. They claim the FDA is hiding it from the public, that would explain why a lot of doctors don't know about it.
4 Answers
- lo_mcgLv 710 years agoFavorite Answer
At most you are guilty of not giving your aunt and the rest of your family false hope and causing them to spend a lot of cash on an unproven treatment.
Instead of looking at unsubstantiated testimonials on youtube, have a look at some genuine research and statistics. A good start is this link; it describes an attempt at independent replication of Burzynski's claims; all nine patient died before the study closed, eight of them because of cancer progression:
http://www.mayoclinicproceedings.com/content/74/2/...
Burzynski is an MD; however he had no specialty training in cancer and had no preclinical or clinical cancer research experience when he announced his 'cure for cancer' 35 years ago.
His ''antineoplastons" - the substances he has isolated from human urine which he claims cure cancer - have not been shown to have any effect on cancer; attempts to replicate his claimed results by the National Cancer Institute, the Japanese National Cancer Institute and Sigma-Tau Pharmaceuticals failed.
This is from Orac's Respectful Insolence blog:
''...Dr. Burzynski first gained fame for his antineoplastons back in 1988, when Sally Jesse Raphael featured four "miracle" patients of Burzynski, who, according to her, had had incurable cancer and failed conventional therapies but were then cancer-free, thanks to Dr. Burzynski. Unfortunately, four years later in 1992, Inside Edition followed up these four patients:
'In 1992, "Inside Edition" reported that two of the four patients had died and a third was having a recurrence of her cancer. (The fourth patient had bladder cancer, which has a good prognosis.) The widow of one of Raphael's guests stated that her husband and five others from the same city had sought treatment after learning about Burzynski from a television broadcast -- and that all had died of their disease. In 1995, a federal grand jury indicted Burzynski for mail fraud and marketing an unapproved drug. The indictment charged that he had billed insurance companies using procedure codes for chemotherapy, even though his treatment was not chemotherapy. He was tried in 1997 but not convicted.' ''
When you contacted the clinic, did you discuss cost? Patients pay $6,000 deposit before beginning treatment. Technically, the drug itself is free because it's only used under Phase 2 trials, but patients pay for incidentals, including consultations, supplies and classes on how to administer the drug, which amounts to about $7,500-$9,000 a month. Not cheap for a treatment that hasn't been proven and is only at the stage of phase 2 trials, huh?
Details of Burzynski's treatments are freely available and highly publicised by his publicity machine; how exactly can it be hidden from doctors and the public by the FDA. I'm no doctor, I'm just someone who frantically researched 'alternative' cancer treatments when diagnosed with cancer, and I know a heck of a lot about it.
Why is everyone on youtube saying it works? Youtube is not a reliable source of information about cancer - anyone can post anything they like. You can find countless testimonials on youtube from people claiming that all manner of things, from poisonous apricot seeds, through toxic oleander soup, to cups of tea, cured their cancer.
To take one example - google Hulda Clark. She claimed she could cure all cancers with her zapper. Her MO was to diagnose people herself - she wasn't a medical doctor - and then , having parted them with considerable amounts of money, she would pronounce them cured of a cancer they never had.
Youtube and other websites are still full of testimonials claiming success with this hocus pocus - but Clark herself has fleeced and killed her last victim. She died a couple of years ago from - yup, you've guessed - cancer.
Cut yourself some slack; you resisted hassling a dying woman about an unproven 'cure'. Well done you
- Anonymous10 years ago
Do you really believe you, and only you, held the cure to her disease and her doctors who spent 13 years becoming doctors, countless more education credits to keep their license and years of experience treating patients with cancer would not know what you know?
Antineoplaston has not been approved to treat anything as it flunked clinical trials.
EDIT: Who are “they”?
Every treatment and device used to treat patients must provide proof to the FDA that it actually works.
Burzynski was unable to provide the proof as it FLUNKED CLINICAL TRIALS.
Doctors are well aware of what is in trials.
The FDA is not hiding anything nor do they have reason to.
Source(s): I am a cancer registrar. - aprilLv 710 years ago
Good thing she wasn't subjected to that "cure," because she would have died much sooner.
Since everyone has already heard about, it's not a very well kept secret huh?? It's BS. Maybe you should read Denise's answer again..
Source(s): i had brain cancer - 10 years ago
why are you beating yourself up over this ? they could have talked to her doctor and asked many questions about this disease .if they wanted to know anything. it is not your place only to do research on this and not them , your cousins should have researched it fully.