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L.
Would I be silly to ask about atypical/adult-onset cystic fibrosis?
I was susceptible to chest infections as a child and had frequent sinus and ear infections growing up. I started having asthma symptoms around 5 years ago now, and these got progressively worse. I've had to add med after med, as it's stable for a while and then gets worse. It is now termed 'refractory'. I struggle with the sensation of a 'stuffy' chest, but saline nebulisers and Active Cycle of Breathing Techniques helps with this, although it has become progressively worse. I continue to have thick, sticky mucus in my nasal passages.
I also started to have vague digestive issues a couple of years back, which have also progressed, and I have had steatorrhea for a year now, increasing in severity, along with incidental findings on a CT scan of my kidneys 14 months ago which showed probable chronic pancreatitis which wasn't properly followed up at the time. I am just awaiting the results of a faecal elastase test and some other bloods to determine the cause of this.
My sweat has always been very salty, and I have suffered hyperhidrosis since puberty. My hands are not badly affected, but they are salty even when mostly dry. I also get some aquagenic hand wrinkling after a short time (5 minutes) in water.
So in short, I have a chronic refractory lung condition, preliminary diagnosis of exocrine pancreatic insufficiency (just waiting on confirmation from the faecal test really), salty skin, and GI issues. Would it be silly to ask about testing?
1 AnswerRespiratory Diseases2 years agoTestosterone Therapy and Sport?
Hi,
This is the third of three related but separate questions.
I am a 17yo FTM and I suffer from severe dysphoria. For me, transition is a necessity. Full transition.
Part of the transition is testosterone therapy. What basically happens is I get pills which stop the production of oestrogens (estradiol etc.), and weekly injections of testosterone, to keep my circulating testosterone levels the same as those of someone of the male sex (AMABs).
The thing is, I also play ice hockey. I'm not super-good at it or anything, but I do want to keep playing for as long as I can (already difficult as I am a Brittle Asthmatic). I have read on the anti-doping websites for UK, Europe, Canada and America that testosterone is absolutely banned.
However, as I understand it, that would be for women competing in women's classes, or for men taking testosterone on top of what their body produces.
Once I start testosterone therapy, my circulating testosterone levels would be the same as any average AMAB. I would also compete in mixed sport, until I have taken testosterone for 6 months or more, by which point I will be able to play mixed or men's.
Would I be covered under TUE?
Thanks
-- Matt
P.S. if anyone has any knowledge of trans men competing in sports similar to ice hockey, that would be good
2 AnswersMental Health5 years agoTestosterone and Liver Damage?
Hi,
This is the second of three related but separate questions.
In female-to-male transgender people who are transitioning, testosterone therapy can cause liver damage.
How is that the case, when people born as male sex (AMABs) produce the same levels of testosterone and yet it does not cause liver damage the same?
Also seems to be the case in AMABs on testosterone supplementation.
-- Matt
1 AnswerMental Health5 years agoWearing glasses for ice hockey?
I've been playing for coming up to two years now. I've played the entire time without my glasses. However, there is a considerable difference between my left and right eye -- one is + and the other is - -- and it's been suggested that this might be a contributing factor in my issues with accuracy and puck control.
I never thought of it before but it would make a lot of sense. However, I don't want to be 'that guy' with a cage AND glasses who has to wipe them down every 10 seconds because they are steaming up. Especially as I am moving to a fishbowl soon.
Any ideas?
5 AnswersHockey6 years agoAm I going to get better?
This is a strange question, but I play ice hockey. I'm 17 now and started just over a year and a half ago. About 6 months in, I had an operation which took me out for 1.5 months and then a tumour was found so I was out for another 1.5 months.
I started back again in September training with U18s every Wednesday. I had bad asthma and didn't know it at the time, so I wasn't keeping up skating-wise and stamina-wise.
I took a step back and started training every second Monday with U18s. Just over a month ago I started training in mixed training with Thunder (local Women's team) every Sunday, and I will probably be playing with them this coming season.
My asthma is now under (very delicate) control with two inhalers and a tablet every day, and a reliever before and after hockey training and games and also when I need it, so I will be going back to U18s training every Wednesday.
Thing is, I work hard at it. I'm ambidextrous, as well, which is a rare trait. But I guess I just don't have any talent because it's taken me this long to get in any team at all, and I'm not great. I fall over sometimes. Out of kit I notch up a neat 44.6kph top speed..but in kit I'm slower than everyone else in drills. I can't get lift on my snapshots or backhands, and I don't have great control or accuracy.
Two girls - who are my friends - started a couple of months after me and have had an unhindered run since then. They have already played a season each with Thunder and U18s.
Will I ever be good?
1 AnswerHockey6 years agoHow do you like your sticks and skates?
Just interested to know how different people like to tape or lace or profile, or whether you're a one-piecer or a two-piecer.
Do you bake your wood? Do you play composite? Do you candy cane your entire stick, or are you trying to get away with an inch or two of tape and nothing else? Flop or tuck? Lace colours (i.e. do you lace yellow because you fancy yourself as Ovechkin) and patterns (normal, under, over, something else)?
I just find it interesting finding out how people like their kit, and skates and sticks are the most customisable bits of kit :P
2 AnswersHockey6 years agoHockey fighting tips!?
I'm 4'10" and play ice hockey. I love scrapping and checking but the problem is the other guys I train with are more like 5'8"-6'3" and I stand no chance half the time. Drive is good but it doesn't win you fights or make you check harder!
I wondered if anyone has any tips for short players wanting to scrap and win for a change, or execute a perfect check on someone a foot and a half taller?!
3 AnswersHockey6 years agoPlaying with other hand in ice hockey?
I'm ambidextrous and have a PM9 blade profile (v. v. slight curve). I have read the NHL Rulebook and can't see anything about this in there but I'd be interested to know if it is legal to swap hands for a bit? Like, my stick is right-handed but I can play equally as well left-handed..really need to know this!
2 AnswersHockey6 years agoMost moving ice hockey songs?
Alright, so we all know Jughead's 'Hockey Song' with the chorus we pretend to know but don't really, and of course there's Warren Zevon's 'Hit Somebody' and sad songs like 'Lonely End of the Rink' by The Tragically Hip and 'Hockey Skates' by Kathleen Edwards.
But I'm looking for really moving ones, like the ones grown men cry to, like 'Big League' by Tom Cochrane (r.i.p. #28).
Any ideas?
1 AnswerHockey6 years agoOfficiating equipment?
I play ice hockey and am interested in officiating, especially refereeing.
However, it seems that special officials' shin guards are all in senior sizes and when I've looked on a couple of websites, they have said that 'any senior level pair will do'.
I'm 11" down there (that's my shins I'm talking about, you crude g*t!) and I'm 17 years old so that's not going to change. Will junior pads be fine? :/
Hockey6 years agoCan I Wear a Visor?
17yo FTM pre-transition. I play ice hockey and train with a mixed team.
My team accept me as male and I don't play in games. When I turn 18 I want to be able to wear a visor to play. Would I be allowed? I mean, there's no reason why cis women should have to wear full cages as it is, so a guy who is still biologically female should be able to wear a visor at the cut-off age..right?
1 AnswerHockey6 years agoCompatibility Check..?
If a hockey shaft and hockey blade are from the same brand, in the same line and have the same taper, they should fit, right?
Just checking as I have a Bauer Supreme One.5 shaft with 0.620 taper, and a Bauer Supreme NXG PM9 blade with a 0.620 taper.
1 AnswerHockey6 years agoNon-IgE mediated hayfever?
My hayfever is something I have suffered with all my life. It has always been pretty bad but has got worse recently. I am unable to find an antihistamine which works to a satisfactory level which allows me to function outside the way normal people can. The best I have found so far is Benadryl Plus (acrivastine+pseudoephedrine), and I am now relying on that alongside my asthma meds and a mometasone nasal spray. The asthma meds (Seretide 125/25 and Salamol) and the nasal spray are free on prescription…but the Benadryl isn't and it costs about £7 for 12 tablets.
My symptoms are as follows:
- facial flushing;
- lightheadedness;
- fluttering in chest;
- tightness and stuffiness of chest associated with asthma;
- full-body intense itching;
- itching of lips and mouth;
- 'allergic shiners', and
- itchy, red, hive-like bumps on my skin.
All this occurs after exposure to pollen, and although the nasal spray helps with the sneezing and a little with the itching around my nostrils, the other symptoms cannot be controlled and, depending on duration and time of exposure, my symptoms range from moderate-severe to severe; once, a friend of mine thought I was having an anaphylactic reaction.
Strangely enough, a Specific IgE blood test done a few months ago was normal range for everything except serum IgE which was elevated. Could it be possible that my symptoms are so severe because my 'hayfever' is not IgE-mediated? Could it be non-IgE mediated hayfever? Does that even exist?
Allergies6 years agoWhat might this be?
To straighten one thing out, I'm a 17yo pre-transition FTM so still anatomically female although I identify as male.
For a good few months now I have had some changes to my left breast. My nipple has become more inverted and produce small amounts of greyish discharge, my veins over on the left side of the breast have become very prominent, it has grown larger than the right breast (most so on the left side of the breast), and I have been getting nerve-type pain in one focused point about halfway between my nipple and my armpit.
More recently, I thought I felt a lump, and the skin became thicker and less soft in comparison to that of my right breast. Even more recently, my skin has taken on a slight 'peau d'orange'-type appearance and there is a bruisey discolouration in the area where I thought there was a lump. The what-I-think-is-a-lump has grown since I found it, although it may be thickening of the tissue rather than a full-on lump. It is irregular in shape.
I'm not freaking out, but I had a tiny Stage T1 Neuroendocrine Tumour in my appendix last year, and although recent follow-up tests were negative, NEC can pop up anywhere and everywhere and the tests have a relatively low accuracy. On my Dad's side of the family, one aunt had terminal Ovarian Cancer, another aunt had BC twice (2nd time terminal), and my Grandfather had terminal Prostate Cancer. My aunts were both under 55 when their cancers were found.
I just wondered what it could be? Should I see my doctor?
2 AnswersCancer6 years agoPeriod cessation?
I am a 17yo FTM, at the beginning of the trans journey and one thing which makes me hugely dysphoric is periods. I can't deal with them. To be a man getting periods just isn't fun.
Is there an OTC way I can stop my periods happening or do I have to go through my GP for this?
3 AnswersLesbian, Gay, Bisexual, and Transgender6 years agoChanging the blade on a one-piece stick?
Is there a way to change the blade on a one-piece ice hockey stick? I've heard you can cut the original blade off to insert a new one (I presume you use stick glue for this) but is this ok? I don't want to wreck my stick, even though it's old :/
1 AnswerHockey6 years agoBauer jr. sticks with PM9 blade?
I was wondering if there is anywhere in the UK I could obtain a complete composite Bauer stick in junior size with a PM9 blade profile.
This is my preferred blade profile but not only do junior sticks give me a low flex which I like but also I'm too short for other stick sizes (without cutting down which increases flex) and so far I've only been able to find senior sticks with PM9, and cutting these down to a junior length would give me a ridiculously high flex!
I would prefer a complete stick, but if that fails then somewhere in the UK stocking Bauer junior shafts and blades would be the next best thing!
I don't care which line it is, just so long as it's Bauer :P
1 AnswerHockey6 years agoCould I still transition?
I understand I have to talk to the doctor about this myself when the time comes and I will, but as a rough idea…
Apparently transitioning (FTM) using testosterone can mean that people with a family history of certain hormone-mediated cancers get some oncogenes switched on. These are breast, prostate, ovarian and neuroendocrine cancers. A paternal aunt had BC twice (2nd time terminal), another paternal aunt had terminal ovarian cancer, my paternal grandfather had terminal prostate cancer and I had a (tiny) neuroendocrine tumour last year.
Would I still be able to transition? Is it completely out of the question, or could I use testosterone gel?
I get that I need to talk it through with my doctor because only he/she will know but I'd like a rough idea if I could have one :/
1 AnswerLesbian, Gay, Bisexual, and Transgender6 years ago