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Could lymphedema be a possibility after the removal of one lymph node?

I had a lymph node removed from my lower left back in March, 2006. The surgeon thought he was going after a lipoma, but it turned out to be a herniated lymph node.

I've had pain ever since the surgery, but I developed swelling around the sacrum after a 2 1/2 hr flight in Feb 07. The swelling has never left and varies in intensity. The tissue around the sacral area feels "crunchy." I am currently in physical therapy and the therapist can feel pockets of fluid as well as several knots and spasms.

I must admit, the pain is severe at times. I really can't imagine living this way forever, although I'm having a hard time getting any Dr to take me seriously.

I know it's a stretch, but could this be a form of lymphedema? The swelling is not so severe that it has deformed my back, but my soft tissue feels crunchy and the pain is horrible.

ANY suggestions would be great!

2 Answers

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  • 1 decade ago
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    I don't think it's common but also i don't think it's impossible.

    My mother has lymphodema from her breast cancer operation and she does "water therapy" . She runs the shower over the affected area and it soothes the pain for a while.

  • 1 decade ago

    Lymphedema can technically happen with any lymph node removal, however, significant numbers of node removal tends to be associated with higher risk of lymphedema. Sentinal node biopsies (removal of one node during breast cancer biopsies) have resulted in lessed, but not complete reduction of cases of lymphedema.

    I would say that this would be an unusual presentation for lymphedema, but the fact that it is persistent since the flight is highly suggestive of it.

    Ultimately, you will probably require some form of compression garment if you want to have it controlled. Some forms of massage are permissible, but deep tissue massage may be doing you more harm than good.

    I know it would be a stretch to find a physician who is actually knowlegeable on lymphedema, but I would start by searching for a vascular surgeon or a physiatrist who specializes in lymphatic disorders for a more definitive answer. If thought to be lymphedema, you will require a specialized compression garment.

    Source(s): I am a PT with certification in lymphedema management.
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