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L'Chaim! asked in HealthOptical · 1 decade ago

Leber's congenital amaurosis?

I was wondering if anyone here has this or knows anyone who does or have any experience with this disease. My younger brother's infant son was diagnosed with this last week. So far they know that the visual impairment is signifigant and I am just unsure on what to say to my brother. Any information/advise is welcome!

:-)

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