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Gluten intolerance, double blind demand?

My doctor checked me and thinks I have a gluten sensitivity/ intolerance. As my doctor explained it there are 5 known levels of gluten issues and the blood test can only test for celiac's and a wheat allergy. He also diagnosed me with IBS. Per his instructions I went gluten free and felt much better. Now (its been almost two months) every time I have gluten in a more than minimal amount I get really painful twisting, bloating intestinal pain.

My husband is being very unsupportive and thoughtless, mocking that since the test was negative there is no way I can have a gluten sensitivity or intolerance. (He's a psychology major, works in cancer and often acts and speaks like he know better then others on many issues including doctors) He will probably also read this question since he is so afraid I will talk about him to "people".

My husband is strongly suggesting (demanding) a double blind study to see if I have a reaction before he will stop harassing me that I am not sensitive to it. Basically he wants a stranger/ friend to give me something with gluten one week and something without another week and see if i get sick. I think thats really messed up. I saw a doctor, I am doing as my doctor suggested, I didn't just go gluten free for a fad and my husband is being such an insensitive ***** about it. So should I agree to do the double blind test, even though I know I will be in pain and sick from it, if it makes my husband believe I have real issues?

3 Answers

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  • 7 years ago
    Favorite Answer

    You are the world's highest authority on how you feel. There is no argument that can change the fact that eliminating gluten from your diet has made you feel better. It doesn't matter whether this change is a placebo effect or a response to some type of vague food sensitivity - your goal is to feel better and you have met that goal. End of story.

    Ask your husband what his goal is. It doesn't seem to be related to your well-being.

  • Anonymous
    7 years ago

    I am sorry. Your husband is just being an ***. DO NOT agree to this so called test. Some people test negative for Celiac and still have damage to the intestinal tract from gluten.

    The only definitive test is a upper GI scope to check for the damage WHILE you are ingesting gluten. Since you have obvious symptom relief I would continue gluten free. Many Celiacs are also lactose intolerant due to the intestinal damage and some have other food allergies or intolerances.

    I have been gluten intolerant for several years and my blood test was negative. I refused to go back on gluten just to have a "definitive" test. I have other food intolerances also that I found through doing an elimination diet. I see a Functional medical doctor now as opposed on the traditional allopathic physicians who told me it was IBS "learn to live with it". Traditionally educated doctors have little or usually NO training in nutrition. Most conditions can be improved or reversed by diet.

    Good luck!

  • 7 years ago

    Sounds to me like you need a new husband, one who is supportive and more interested in your health than his own ego. If he's so bright he would have heard of non-celiac gluten sensitivity (intolerance). Whatever you do, please don't undergo his stupid double-blind test. You don't have to prove anything to him or anyone else. Do what makes you healthy. BTW, I have non-celiac gluten intolerance but fortunately my husband is very supportive. He has witnessed numerous times how ill I've become if I accidentally ingest the smallest amount of gluten. Stick to your doctor's recommendations who knows what's best for you.

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