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Would I qualify for a clinical trial?
When I was 13, I got a raging corneal pseudomonas ulcer on my right eye from putting in a contact when my eye was a bit irritated (turned out to be scratched). Once my doctor realized what it was, I was rushed to Emory Hospital in Atlanta. I was minutes away from an emergency transplant, but had eaten that day, so the doctors put me on drops every 15 minutes around the clock to give my eye a fighting chance. This was initially just to save my eye.
I responded well to the drops, they held off on the transplant, and my eye scarred up nicely. The scar is smack dab in my field of vision, but over the past 5 years, it's improved greatly. I went from barely seeing movement in front of my face to being just at the line for legal blindness.
I've seen multiple corneal specialists and surgeons about possible transplants just to get back a "normal" perception, but every procedure mentioned comes with a high chance that the scarring from the surgery will alter my field of vision anyway. So they're a no-go.
LONG STORY SHORT... I recently turned 18, and my dad is big into the whole stem cell research thing. There have been major successes with corneal regeneration in clinical trials, but is my case bad enough to be considered for one? Are these doctors looking for more of a challenge? Do you know of any trials personally? I've found multiple ones online, but human recommendations are always preferred.
1 Answer
- David ELv 76 years agoFavorite Answer
I dont know it the scar is so opaque that you cant see through it or if it just distorts your cornea so much that you can't get good vision. If it is the latter, a scleral contact may give you much better vision. Find someone in your area that fits a lot of them and see if they can help you.