Neuralgia patients only: What treatment options have you tried for Trigeminal and/or Occipital Neuralgias?

Question

I tried Tegretol XR, Neurontin, Lyrica, and finally microvascular decompression surgery for Trigeminal Neuralgia.  I needed two more surgeries last year because the titanium plate they put in my head kept shifting.  I then developed Occipital Neuralgia from the other surgeries.  I recently had the Occipital nerve severed to take away the pain.  I continue to have extreme pain in my eye and I'm told that the first surgery may only work for 3-5 years.

rehabob · Accepted Answer

Go to the Mayo Clinic in Rochester, Mn.  My father had TN and he would get "blocks" (not too much worse than a shot) periodically. They would work for a while (years), but every time he went back they had a newer treatment, that was not that traumatic (nothing like severing the nerve) The side effects were very minor. Also, they are probably cheaper than your local hospital and doctors.

He was treated there for 20 years before he passed away at 93.

P.S. Tegretol and Neurontin can cause lupus type side effects which will report positive for lupus even though you do not have the disease. I thought they were harmful.

RW · Answer

I have had several injections which would only last for maybe a week to two weeks and finally had neck surgery twice where they put one post in first and then two more.  I have arthritis in my neck.  been diagnosed with occipital neuralgia and the injections do not work.  Was wondering if there was anything to block that nerve or severe it so I could get some relief?

Anonymous · Answer

yep

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Neuralgia patients only: What treatment options have you tried for Trigeminal and/or Occipital Neuralgias?

3 Answers