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Chronic Fatigue Syndrome Urgent Help Needed!!!!?
I have had chronic fatigue syndrome for 7 months and only just got diagnosed a few days ago. Now that i know what iv got i really would like to know about it more...
What foods can i eat that wont upset my stomach! Everything i eat/drink my tummy cant handle. Even brushing my teeth! Im so over feeling like crap, so is there anything i can and cant eat?
I rarely ever go to school and im in year 8 so its really hard. I never see my friends any more even though they all miss me and i miss them so much. The doctor says i need to get out more and do more fitness but i can barely ever get out of bed. I used to be in a cheerleading team that won nationals 5 years in a row but i had to quit all of it because i got really tired and weak.
I can never get to sleep.. either my stomachs hurting or my head is hurting.. there's always something bothering me and i usually get to sleep at around 1 am - 2 am. I know its bad but i just cant concentrate because lately iv been getting really paranoid and keep thinking that people are downstairs in my living room taking things and that they are going to take me.
I keep forgetting things like once i forgot my friends name and now i cant do simple maths equations like 8+4 and im just getting really embarrassed and frustrated
My eyes are always burning and i my back gets really sore but i dont know if thats from CFS or not
i rarely eat/drink/sleep/socialise/exercise im practically bed ridden.
Please help! im only 13 and its really scaring me :(
4 Answers
- Anonymous8 years agoFavorite Answer
I don't think you should do more fitness, it will just burn you out and probably not help you in any way. Some people who have CFS have to use a wheelchair if they have got it real bad.
For your sleep you could go to your doctor and ask for something called "Melatonin". It will help you to get to sleep faster.
And that your can't remember stuff, and cant do simple math is one of the common things among people who suffer from CFS so don't beat yourself up about it.
Get a pair of good sunglasses. Personally I wear sunglasses ALOT, even when it's not bright for "regular people".
I hope this helps you!
Source(s): Myself (Suffering from CFS for almost 2 years now) My doctors - 8 years ago
I'm sorry! I'll search some stuff up for you...
Eat fruits, vegetable, meat, and fish. Try to reintroduce other foods one by one. Don't eat citrus, potatoes, peppers, aubergines and tomatoes. Don't eat or drink any dairy products, alcohol, coffee, or tea. See if that makes you feel better.
Use organic ingredients to prepare food from scratch, so you know what's in your food.
I hope this helps! Check out the link to learn more.
- Anonymous5 years ago
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- 8 years ago
I'm so sorry for you, 13 is a very young age to be diagnosed with this awful illness and I'm not surprised that you're feeling scared. The bad news is that even though I'm a fellow sufferer I'm still trying to learn out how to live with this illness, but the good news is there are a handful of tips I can pass on.
First up, I know an awful lot of chronic fatigue sufferers with tummy troubles, even though its not 'officially' part of our symptoms. I think its because we tend to live off 'adrenalin' to get things done rather than our energy reserves and our bodies aren't designed to work like that. I highly recommend buying some herbal teas - peppermint really worked for my tummy, it might take a week or so of regular drinking to work but it helped me a lot. I was eventually diagnosed with a hiatus hernia and given omeprazole tablets that really helped with the acid in my stomach. I'm not sure if a doctor would be able to give the same diagnosis to you at your age (I had an endoscopy where they put a camera down your throat) but it might be worth having a word with your doctor to see if there's anything else they can do. If you're one of those patients with a dr that doesn't listen or doesn't care it might be worth getting a second opinion, too, if you have more than one doctor at your surgery.
Some patients swear by eating certain foods, but I've tried lots of variations on what to cut out of my diet and none of them have really worked. Some people swear by diet though, so it might be just me. While there's all sorts of arguments over what to cut out, try leaving wheat out of your diet (so no bread, cereals, etc).
I too get awful headaches with my chronic fatigue. There's a very good medicine that you rub on your head called 'fourhead' that looks like a pritt stick but works really quickly and has helped me an awful lot down the years. You should be able to buy one (or get someone to buy one for you) froma local chemists (Boots stocks it in my town). Failing this, paracetamol tablets help me not recover but to take the slight edge of my illness so I can at least think about something else!
I know well how embarassing it is trying to remember things or concentrate with this illness. It is very difficult and frustrating, but remember its not your fault - its the illness messing with your head and you shoulodn't be embarassed by it, sadly its quite natuiral for us sufferers.
I'd love to be able to help you with how to sleep - but I'm still trying to figure that one out myself! My doctors say keeping to a regular pattern where you go to sleep at the same time each night helps.
I find exercising really difficult too. The best thing to do is not to push yourself. You know better than your doctors how far you can walk. My advice would be to do a little on the days when you are feeling well (comparatively speaking!) and not push yourself on your bad days.
I'm sorry to hear that you can't get out much to see your friends. Is there any chance that they can come round to you? If there's a good friend that you're still in touch with can you organise for them to see you perhaps once every week (maybe the weekends when they are free?) If not, would you be able to cope with a telephone call with them once a week? I know its awful feeling left out of everything and I synpathise with you. My other advice would be to find a 'new' lot of friends who understand you. Most towns will have an m.e./chronic fatigue/fibromyalgia (all 3 are very similar illnesses) support group. If you're well enough to go to one then look 'cfs suport group' and your town in a search group. If you're not well enough to go then join a cfs forum, where you can moan away to your heart's content and swap stories with other sufferers. This site http://www.chronicfatiguesyndrome.me.uk/ is a particularly good one!
Anyway, I wish I could give you a magical cure but I'm afraid all you can do is be as patient as you can, wait for your body to heal (as hopefully it will in time) and get lots of rest. I wish you all the luck in the world and hope that you're one of the lucky ones who makes a full and speedy recovery!