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Pilonidal Sinus or Hidradenitis?

I know many will say talk to your doctor. I did, and I have been on Humira for over a year and do not feel as though it has done anything. I went to a dermatologist after having gone to an emergency room. I went to the ER because I felt some pain at my tailbone, right in the cleft of my buttocks. The ER doctor has made a small incision kind of to the left of the cleft where the pilonidal cyst was. The area around my buttocks and my lower back were very red and such and the ER doctor said she thought the stuff on my back was a yeast infection. Anyway they did the incision which didn't drain much anything out, because she didn't do it right on the cyst itself. Skin creme for yeast infection did nothing for my back. When I went to a dermatologist she insisted it was Hidradenitis Suppurativa. Looking at how long I have been on Humira which is supposed to at least help control hidradenitis, I don't believe this is what I have. I don't have periods of healing, and then draining, with scar tissue in between a bunch of basically pimples. I have a couple large abscesses on my buttocks that drain from what I believe is now a hole where the pilonidal cyst is/was kind of right near my tailbone. I have read a lot about pilonidal sinus and what can happen if a pilonidal cyst is left untreated. Does it sound like a pilonidal cyst that was misdiagnosed? I am honestly hoping it is in fact pilonidal sinus that may require minimal surgery to take care of. I don't like being on the Humira. 

1 Answer

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  • Mike G
    Lv 7
    11 months ago

    Just because you don't believe it doesn't mean it isn't true.

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