This is for adults that grew up with Sensory Integration Disorder.?
How old were you when you first noticed you were having sensory trouble? How old were you when you became old enough to harness or handle sensory overstimulation? Did you ever "grow out of" certain things? How long did you receive OT? Do you remember how you used to act how as a child when you became over stimulated and couldn't handle the situation? How did this play on you school performance? Did you see yourself ahead/behind others in your class? Did you catch on to things more slowly than other children (ex. potty training, holding a pencil, etc...)? Were you socially behind other kids? Were you prone to tantrums?
My son is 4, and has Sensory Integration Disorder. I just want a better understanding of what is going on. I've read things, but I'm wondering if some other things that I'm noticing in him is a result of his disorder or if it may be something else. Any information is helpful.
2007-05-18T17:19:04Z
He has been diagnosed with SID. He's received OT for a year now. I'm not self diagnosing here. I do everything his OT, his teachers, his doctor tells me to do. Trust me when I say that I'm not some backwoods person without a clue.
Rachel Nicole2007-05-17T16:48:04Z
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I've always noticed a few things, especially really hating noises, but my mom still doesn't think I have SID (I found out because she's convinced my brother has it, which I am too, but of course in her eyes I'm just a hypochondriac. *rolls eyes*)
With loud noises, I either leave, curl into a ball, and/or cry. I ended up being homeschooled, but in orchestra sometimes (at 16!), I would have to stop playing and hold my ears or right next to them. I feel like I'm about to lose control and my muscles sometimes involuntarily curl me up around loud noises.
A lot of people with SID are extremely intelligent. My mom used to refuse to believe it existed based on the notion that "all really smart people have quirks". (I think everyone in my immediate family has an IQ between 160 and 180, but I don't remember the exact numbers). I think pretty much everyone in my family (at least three of us have some form of SID) feels very ahead of the game intellectually but very behind socially. The homeschooling may have played a part in that. My youngest brothers are now 10 and 8 and go to a public school with OT. It seems to help. I wish I could have gotten help when I was younger.
I was very prone to tantrums, but that may have had more to do with my personality than with SID. I think I potty trained and wrote and read and walked very young, actually, but I've always struggled with math.
There are fun, helpful activities you can do. Please don't wait and hope it will get better or tell your child they're fine and making things up. =( it won't get better. All that changes as you grow up is that you learn how to avoid things that bother you more. Definitely read The Out of Sync Child Has Fun for fun games to help him grow. =) Sounds like you're definitely headed in the right direction. Keep going, and stay encouraged-- if you start young, there's a chance for a lot of good to be done.
I am not an adult with Sensory Integration Disorder, but my child had it (and still has it in some areas), and I have a fairly good background of knowledge in this area.
OT can help mitigate some of the sensory defensiveness, and there are a number of therapies available for various aspects of the disorder. I assume you have read Jean Ayres book, "Sensory Integration and Your Child." which is helpful in describing the disorder. However, within the last five years, new research is discovering that the brain is far more able to change than formerly thought. Greenspan is one author who writes extensively on early develpmental stimulation as a way to create better outcomes.
Kids with sensory integration problems often also have problems with other tasks (physical and cognitive) that require integration. One theory is that this may be related to issues in the corpus callosum (not sure about the spelling), which is the "white matter" linking the right and left brain.
Sensory integration disorder has also been linked with people who have autism spectrum disorders, from Conners-type to Asperger-type. Kids with Aspergers characteristically are quite verbal and often very intelligent, but have problems with motor coordination and social issues.
Observe and note as closely as you can any behaviors, actions, etc. as to what your child is able to do as well as what he has trouble with.
CONTACT A DEVELOPMENTAL PEDIATRICIAN, share your concerns and observations. Please do not delay. Whatever is going on will be most improved with early intervention. Your parental input is essential, but please don't try to diagnose this all by yourself, or even through YahooAnswers. The sooner you find out what is going on and how to deal with it, the sooner the intervention, and the more hopeful the outcome.
By the way, Regional Centers may pay for therapy, but first you have to have a diagnosis. Make sure the person doing the diagnosis is up-to-date on current brain research and on autism spectrum disorders.
statistics dont help u need to go to a neurologist. it might not even be just SID it could be something more serious like a cerebral palsy variant or something.