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Does any one know about Autosomal Deletion Syndrome?
I have a daughter 21 months old, We just got back from seeing her GI Doctor. We came home with paper from the visit. On there they have Autosomal Deletion Syndrome. I have no clue want that is. The doctor never mention it. I am still doing research and thought I ask here.
Does your child have it and how they found it.
What are the problems your child is having.
Thanks
My daughter having so many problems we are not getting answers for. She been failure to thrive since one month old. Right now she has a feeding tube.
2 Answers
- lilmommaLv 41 decade agoFavorite Answer
i'm so sorry for your child's illness. i found a lot at wikipedia, but nothing to answer your questions. you have so much on your mind now, please allow me to do some research for you, i'll try to find a support group near you. can you tell me where you live, just the town and state? email me, and i'll check with doctors, websites, whatever. i'd be glad to do what i can for you.
Source(s): so far, i've found this: http://ghr.nlm.nih.gov/condition/opitz-gbbb-syndro... maybe you can start there? let me know what you need, let me help. i'd be glad to!
